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Exercise may be, by far, the most
controversial subject regarding CFS and FMS sufferers. Based on the notion that exercise
will improve symptoms, most of our physicians encourage us to exercise. But when we do, we
often feel worse or even relapse severely. Subsequently many of us may avoid exercise
entirely.
What have the researchers said about exercise and CFIDS? How has this past
knowledge influenced our physicians approach to prescribing exercise as a part of
our treatment? How has the knowledge about exercise changed? This page takes a closer look
at exercise. After reading the information presented, you will ultimately need to
determine for yourself if exercise is right for you. Consult with your physician, always,
before starting an exercise program.
RESEARCH
 | In the first study (1988), it was shown
that cardiovascular fitness or flexibility exercise reduced FMS symptoms. This was a study
of 42 patients with Fibromyalgia. At the end of the study, 83% improved in their aerobic
stamina. Although their sleep and pain sites did not change during the study, they
experienced less tenderness and better mental health characteristics. It was explained
that exercise could impro9ve FMS symptoms in several ways. First, physical activity
results in decreased pain sensitivity, referred to as "post-run hypoalgesia"
because serum endorphin levels increase following exertion. Second, exercise leads to
increased levels of adrenocorticotropic hormone cortisol and growth hormone, which can
confer increased tolerance to pain and improved muscle fitness. Third, with improved
fitness, the muscles are less susceptible to damage.
"A Controlled Study of the Effects of a Supervised
Cardiovascular Fitness Training program on the Manifestations of Primary
Fibromyalgia" by G.A. McCain, D. A. Bell, et. al., Arthritis and Rheumatism, Vol.
31, No. 9, Sept. 1988
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 | Because pain and fatigue cause
inactivity and deconditioning, which leads to more pain and fatigue, exercise was found to
be a key aspect of FMS management in 1992. They suggested that low-impact, low-load,
repetitive activity, such as brisk walking, biking, or swimming for 30 minutes 3-4 times a
week will enhance general fitness, posture and flexibility, improve blood flow to the
muscles, and contribute to a general sense of well-being. However, their model was a well
persons benefits applied to the FMS patient. They did not take into account the
possible underlying physiological causes for pain and fatigue seen in FMS.
Physician and Sportsmedicine, Oct, 1992
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 | The focus of the next four articles
is on the role of muscles in Fibromyalgia and continued to play a huge role in the belief
among physicians that exercise was good for those with FMS. (1990s).
 | The first study found normal muscle
strength in FMS patients.
"Isokinetic and Isometric Muscle Strength Combined with
Transcutaneous Muscle Stimulation in Primary Fibromyalgia Syndrome", by S.
Jacobsen, et. al., Journal of Rheumatology, Vol. 18, 1991
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 | The second study noted normal muscle
tension in FMS volunteers even though many complained of "tense" muscles.
"Is There Muscle Pathology in Fibromyalgia Syndrome?"
by R. Simms,
Rheumatic Disease Clinics of North America, Vol. 22, No 2, May 1996
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 | The third study concluded that global
muscle dysfunction in FMS can largely be attributed to disuse or to the muscles being out
of shape, which is also referred to as deconditioning.
"What is the Future of Fibromyalgia?" By D.L.
Goldberg,
Rheumatic Disease Clinics of North America, Vol22, No 2, 1996
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 | In the fourth article, Robert
Bennett, head of the division of arthritis and rheumatism at Oregon Health Sciences
University in Portland, supported the notion that there are focal abnormalities in the
location of tender points. He reported that the local areas of muscle pain are enhanced in
FMS due to changes in the central nervous system that exaggerates pain impulses. The
resultant pain leads to disuse and deconditioning.
"The Contribution of Muscle to the Generation of
Fibromyalgia Symptomatology", by R.M. Bennett, Journal of Musculoskeletal Pain,
Vol4, No 1/2, 1996
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 | A 1995 Danish study evaluated a
steady exercise program and an aerobic dance program in the treatment of FMS. Of 176 in
the program, only 16 people completed the program. And, after 12 weeks, there was no
improvement in pain, fatigue, general condition, sleep, muscle strength or aerobic
capacity. They concluded that the high percentage of dropouts and the absence of
improvement illustrated the difficulty in treating FMS with physical modalities.
Journal of Musculosketal Pain, The Haworth Medical Press,
Vol. 5, No 1, 1997
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 | In 1996, Norman Rosen. MD, a
musculoskeletal specialist who is the director of Rehabilitation and Pain Management
Associates in Maryland, and who suffers from FMS, spoke at the Oregon 96 Fibromyalgia
National Convention about exercise. He said that muscles, tendons and joints tighten with
inactivity. And tight muscles can impair balance, ease of movement, and posture. He
explained that some FMS patients are reluctant to exercise because its painful and
because they believe they might be doing more damage. "Hurt does not equal damage.
"No pain, no gainbut dont act insane!" is his motto. He urges his
own patients to pace themselves and be a little gutsier about physical activity. He
encourages us to take pain medications prior to exercise to prevent excessive discomfort.
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 | In 1996, Canadian researchers found
that patients reporting musculoskeletal pain exercised very little. The authors did not
say definitively what caused the pain suffered by FMS patients. However, they speculated
that the patients Musculosketal pain may have resulted in less physical activity,
which in turn launched a cycle of continuing pain.
"Musculosketal Complaints and Fibromyalgia in
Patients Attending a Respiratory Sleep Disorders Clinic", by F. Donald, ET. Al.,
The Journal of Rheumatology, Vol. 23, No 9, 1996
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 | Then, in 1997, Robert Bennett, MD
softened his view of exercise on FMS. He said, "Too vigorous exercise will cause a
flare-up of FMS/CFS". When asked to explain his new view, he said it was known as the
effect of the J-shaped curve. In general, he recommended that FMS/CFS patients who have
not exercised for many years start out with no more than five minutes of exercise a week.
This should gradually be increased to 20 minutes three times a week. This should be
achieved over a six-month period. He went on to say that FMS/CFS patients need to
"listen to their bodies". Although everyone who starts an exercise program feels
sore initially, if the soreness persists for more than three days, they have done too
much. He encourages us to not give up on stretching and low-impact aerobic exercise due to
this experience. Exercise, he said, may not improve our condition, but it is one of the
keys to coping with FMS/CFS. And, finally he indicated that there are a variety of muscle
conditions with a defective energy machinery (mitochondria) which may present in FMS/CFS
with reduced exercise capacity, muscle cramps during exercise, and muscle weakness.
Sapient Health Network, March, 1998
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 | In his 1997 book "From Fatigued
to Fantastic", Jacob Teitelbaum, MD reports on exercise. As a sufferer of FMS, he has
evaluated the effects of exercise from his own perspective. He concludes that exercise is
very important for our sense of well being. But, that post-exertion exhaustion is a real
problem with those with FMS/CFS. He suggests that as our health starts to improve, slowly
add exercise to our regime. Begin with something gentle, such as walking or swimming. If
we feel exhausted the next day, we probably pushed too hard and should take it easier the
next time. He feels that as our symptoms improve, our post-exhaustion will change to a
"good tired" for a couple of hours and then to a good feeling the next day. He
recommends walking as the primary exercise for those with FMS/CFS.
From Fatigue to Fantastic, Avery Publishing
Group, New York, 1997,p 72-73
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 | Paul Cheney, MD of the Cheney Clinic
in North Carolina, a clinic specializing in CFS/FMS since 1994, comments on recent
knowledge concerning exercise. He cautions against aerobic exercise-any kind of
sustained activity, such as running or walking or swimming, designed to raise the heart
rate and increase oxygen flow throughout the body. He explains that exercise beyond a
certain point can further damage the mitochondria (energy producing part of the cells).
This system appears to be malfunctioning in CFS/FMS patients and is vulnerable to
excessive aerobic exercise. (In a previous Shasta CFIDS newsletter, a report on the role
of L-Carnitine on improving the mitochondria of the cells shows promise. The
recommendation is for 3-4 grams of L-Carnitine a day. Enterprise Pharmacy can compound the
prescription for you.) Dr. Cheney explained, however, that our anaerobic system appears to
be in much better shape. This allows people to maintain muscle tone and strength with such
exercises as weightlifting, isometrics and stretching. He recommends a routine of 10
seconds of activity followed by 60 seconds of rest. One particular activity he has found
to be useful is rebounding or bouncing, using a bungee cord contraption called a
bounce-back chair. NASA researched the rebounding concept in 1980 to help astronauts
counter the effects of the weightlessness of space travel. Its benefits seem to related to
the physiology in Chinese medicine of balancing body systems, as it seems to help restore
the autonomic nervous system balance that is out of whack in CFIDS patients.
The CFIDS Chronicle, July/August, 1998
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